Our Accomplishments

Through the active participation of people living with ALS and the broader community, we have made significant accomplishments together.

  • Lobbied Ohio lawmakers to commit $1 million for people living with ALS alongside Ohio General Assembly Representative Jamie Callender to increase direct patient and family services.
  • Assist speeding up the discovery of new treatments for people living with ALS through more clinical trials and expanded access to investigational drugs by passing the ACT for ALS Act.
  • Adovated for the elimination of the 2-year waiting period before people living with ALS receive Medicare benefits due to disability.