Research

Robert Packard Center for ALS Research and ALS United Announce Joint Research Funding Partnership

October 29, 2025 Comments Off on Robert Packard Center for ALS Research and ALS United Announce Joint Research Funding Partnership

The Robert Packard Center for ALS Research at Johns Hopkins and ALS United are pleased to announce a collaboration to jointly fund preclinical basic science research into amyotrophic lateral sclerosis…

ALS United Ohio Provides Funding for FNIH Initiative

June 13, 2024 Comments Off on ALS United Ohio Provides Funding for FNIH Initiative

AMP® ALS will create the largest open data platform for ALS research We’re proud to announce that as members of ALS United, we are participating in the Accelerating Medicines Partnership…

Researcher

BREAKING NEWS: FDA Approves New Therapy for SOD1-ALS

April 25, 2023 Comments Off on BREAKING NEWS: FDA Approves New Therapy for SOD1-ALS

Today, the FDA announced it has granted accelerated approval to tofersen, a treatment for people living with mutations of the SOD1 gene. This is a significant victory for the ALS community and…

OSU Researcher Dr. Kolb and Brutus Buckeye

ALS Research Update from The Ohio State University

February 27, 2023 Comments Off on ALS Research Update from The Ohio State University

Greetings from Ohio State and the OSUWMC ALS/MND Multidisciplinary Clinic and Research Program! I’m proud to bring you these updates on ALS research activity and accomplishments by your Buckeye ALS…