Newly Diagnosed

You are not alone.

Receiving a diagnosis of ALS is challenging and overwhelming. There is so much to know, a great deal to consider, and typically a host of questions. While no two people with ALS are alike or will experience the condition the same way, there is a great deal of collective knowledge and wisdom available from health care providers, people with ALS, family members and caregivers.

Register with Our Organization

Our team of professional Care Services Coordinators provide expert one-on-one case management for people living with ALS, free of charge. Our office is open Monday through Friday. Please reach out to us at 1-866-273-2572, email us at, or fill out the Contact Us form here.

Learn More About ALS

Watch our series of educational videos and webinars to learn more about the disease, living with ALS, and treatment options.

Videos and Webinars >

Register with the National ALS Registry

The National ALS Registry may be the single largest ALS research project ever created and is designed to identify ALS cases throughout the United States. Most important, the Registry is collecting critical information about the disease that will improve care for people with ALS and help us learn what causes the disease and how it can be treated.

Visit the National ALS Registry website >

Learn About Insurance, Medicare, and Veteran Coverage

It is important to learn about your insurance coverage. You may want to contact your medical insurance provider and request that you be assigned a case manager to be your primary point of contact.

If you served in the military, contact the Department of Veteran Affairs (800-827-1000) about eligibility for health, vocational rehabilitation and disability programs and services.

Learn about Medicare and Home Health >   Veteran Resources >