Newly Diagnosed Guide
Whether you have just been diagnosed with ALS, or whether it’s been a few months, this guide will walk you through the most important things you need to know. Below you'll find the steps you can take now to get the support and resources you need—as well as additional information when you feel ready to learn more.
Quality of Life with ALS
Explore ways to live with purpose, connection, and support after an ALS diagnosis while caring for emotional, physical, and practical needs.
ALS Medical Decisions
Review important medical decisions people living with ALS may face, including care teams, treatments, breathing support, feeding tubes, and advance planning.
Paying for ALS Equipment
Learn how insurance, Medicare, loan closets, and local ALS organizations may help cover or provide equipment needed for daily life with ALS.
Employment & ALS
Learn about work-related decisions after an ALS diagnosis, including when to share your diagnosis, planning ahead, benefits, and workplace accommodations.
Health Insurance for ALS
Understand key health insurance considerations after an ALS diagnosis, including Medicare, Social Security Disability Insurance, and coverage for care and equipment.
Sharing Your ALS Diagnosis
Find guidance for deciding when and how to share an ALS diagnosis with family, friends, coworkers, and others in your life.
Coping with Your ALS Diagnosis
Find support for processing an ALS diagnosis, managing anxiety, building a care network, and taking the next steps one day at a time.
ALS Diagnosis Second Opinion
Learn why a second opinion can be helpful after an ALS diagnosis and how to find an experienced ALS specialist for confirmation.
ALS Diagnosis
Learn how ALS is diagnosed, why testing can take time, and how specialists help confirm symptoms, rule out other conditions, and guide care.
Early ALS Symptoms
Explore common early ALS symptoms, how they may appear in different parts of the body, and when to seek medical evaluation.
This guide was created by Your ALS Guide, an educational website for families impacted by ALS.
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